Patient Support Groups

The following is an alphabetical list of national, regional and local patient support groups for people with skin disease. They are often run by volunteers who have the disease themselves, and many people find it enormously valuable to have such contact with others, both for support and for practical help.

Some groups may offer patient information as well as peer support. As with any organisation, it is important to review the source of the information. If you are planning any changes to the management of your condition based on the advice of other patients, it is always good practice to discuss this with a doctor, or other medical professional first.

Please note, these organisations are independent of the BAD. This list has been developed to help patients who are interested in exploring peer support groups. The BAD is not responsible for content produced by third-party organisations, nor by linking to the websites of organisations do we endorse the content of these organisations, whether on their website, forums, or social media channels.

Basal cell carcinoma

Behcet's Syndrome

Birt-Hogg-Dubé (BHD) Syndrome

Birthmarks

  • Birthmark Support Group | info@birthmarksupportgroup.org.uk

Bowen's disease

Darier's disease

  • Darier's Disease Support Group Mrs J Davies 29 St Annes Road Hakin Milford Haven Pembrokeshire SA73 3LQ Tel: (01646) 695055

Dermatitis herpetiformis

Dermatofibroma

Dermatofibrosarcoma protuberans

Discoid lupus erythematosus

Dissecting cellulitis of the scalp

Disseminated superficial actinic porokeratosis

Dystrophic epidermolysis bullosa

Ectodermal Dysplasia

Epidermolysis bullosa simplex

Gorlin Syndrome

Granuloma annulare

Hailey-Hailey disease

Hereditary leiomyomatosis and renal cell cancer (HLRCC)

Hidradenitis suppurativa

Junctional epidermolysis bullosa

Juvenile xanthogranuloma

Lentigo maligna and melanoma in situ

Lichen planus

Lichen sclerosus

Lipoedema

Male genital lichen sclerosus

Marfan Syndrome

  • Marfan Association UK

Mucous Membrane Pemphigoid

Myositis

Necrobiosis lipoidica

Neurofibromatosis

Other national support groups

Pemphigoid

Pseudoxanthoma Elasticum (PXE)

Squamous cell carcinoma

Sturge Weber syndrome

Subacute lupus erythematosus (SCLE)

Telogen effluvium

Tuberous Sclerosis Complex (TSC)

Xeroderma Pigmentosum