Patient Support Groups

The following is an alphabetical list of national, regional and local patient support groups for people with skin diseases. They are often run by volunteers who have the disease themselves, and many people find it enormously valuable to have such contact with others both for support and for practical help. These charities may also provide information about research studies, fundraising events and more.

Basal cell carcinoma

Bowen's disease

Darier's disease

  • Darier's Disease Support Group Mrs J Davies 29 St Annes Road Hakin Milford Haven Pembrokeshire SA73 3LQ Tel: (01646) 695055

Dermatitis herpetiformis


Dermatofibrosarcoma protuberans

Discoid lupus erythematosus

Dissecting cellulitis of the scalp

Disseminated superficial actinic porokeratosis

Dystrophic epidermolysis bullosa

Epidermolysis bullosa simplex

Granuloma annulare

Hailey-Hailey disease

Hidradenitis suppurativa

Junctional epidermolysis bullosa

Juvenile xanthogranuloma

Lentigo maligna and melanoma in situ

Lichen planus

Lichen sclerosus

Male genital lichen sclerosus

Necrobiosis lipoidica

Other national support groups

Squamous cell carcinoma

Subacute lupus erythematosus (SCLE)

Telogen effluvium